Unravel Cancer: Experiences with family battling cancer
17 January 2010
23:21   Intensity

This ain't no Calvin Klein perfume ad, folks. This is the real deal.

You know how people use common phrases to talk about their current state like, "I was so nervous", or "He put my nerves on edge" or "Jangled my nerves"? Well, I know the origin of these phrases now. It comes from injuries to the central nervous system, like the whiplash I got two weeks ago.

It happened, sadly, from a freak hugging accident. A friend went to pick me up off the ground, and did so in such a way that I startled, resisted, and my head went flopping over my back like a dead fish. A bummer on many levels.

It's taken til now for me to speak about it because my experiences after that are what were the most challenging.

Apparently I had a cold coming on. The whiplash prevented my lymph system from working properly, and the cold germs got stuck in my upper body. My head & lungs became very infected. From an Eastern medicine perspective, my heart and liver were also weakened, along with my blood.

Emotionally, what triggered it was an incident that happened with my boss. On Day 3 of the whiplash, I took the risk of showing up at work for a few meetings with him. I don't want to go into all the details, but let's just say he was unhappy about my injury, and made sure that his anxiety & fear were heavily communicated in my direction.

By the evening, I was so ill my cranio-sacral bodyworker refused to see me. She said anything she did would make me worse, and that I needed to treat the infection ASAP. The next day I dragged my weary self to my acupuncture/herbal doctor. My blood pressure was so low by the time I got there, she diagnosed me with hypotension.

Meanwhile, I kept having a severe anger & rage reaction. Even my roommate said my seemingly uncontrollable spiral downward into anger was "uncharacteristic". While at the Eastern medicine doctor's office, she confirmed that the heat in my body would cause an anger reaction. The needles she put in that day helped me tremendously to start feeling better. The heat began to dissipate, and my sinus' finally began to drain. Boogers be gone!

It wasn't til a week later that I was well enough to receive bodywork. When I explained my emotionally reactive state to my massage therapist, she asked me, "Do you remember any times in childhood where your body was jarred, and it was against your will & you thought it was unfair?" Tears began flooding down my face as I replied, "It wasn't just one memory, it was 1,000's of memories. That was my entire childhood!"

I further explained my father's alcoholism, the physical abuse from him, as well as the non-stop rough-housing from my brothers. This was on top of the violation of sexual & physical abuse from my uncle when I was very young. On top of all this physical stuff, was the mental/emotional shutout I experienced from my brothers & my parents both. I didn't find my voice until high school, and by then I was so pent up with rage at being unseen, unheard, un-validated for so long that nobody wanted to listen to me then, either. Nobody likes hearing a teenager scream.

It's so hard to describe what this was like, day in & day out. That's not to say there weren't times of levity & fun. But, there was such little support of my person-hood, my autonomy, and my right to a healthy physical environment. My poor mother was doing the best she could. We had many wonderful moments together, but she only had so much bandwidth to defend me against my brothers' bullying & dominance. I told my roommate later, "Shit rolls down hill, and I was at the bottom of the hill."

By the age of 10, I had learned my feelings, thoughts, and opinions weren't valid. I learned to doubt my feelings, to doubt reality. I learned men were scary & bad. I learned my body was dirty, and would betray the emotions & vulnerability I held inside if I didn't control it. I learned that showing vulnerability meant others would prey on me. I learned nobody was safe, even family. These simply aren't the skills a child needs to launch successfully into adulthood.

What my bodyworker explained was the combination of whiplash and emotional battering from my boss caused a trauma reaction. It was like I had PTSD. Honestly, it was one of the scariest things I've ever witnessed myself doing. I truly had no control over my emotional state at all.

There has not been much for me to do to overcome this, except recognize it, keep reminding myself that I'm an adult, that none of the things that happened back then are happening now, and that I am safe, despite my mind's desire to think otherwise. Essentially, staying in the present moment has been my only salvation.

However! This is not a bad thing, and I'll tell you why: it's taught me how much unresolved stuff still lurks in my psyche. It taught me how much of my past I was putting on my boss. It taught me how much my nerves were on edge all the time from stress. But, that the stress was something I was encouraging, and bringing into my life by not taking care of myself. (That also includes saying the word "no" to my boss, or to work situations.) Most importantly, it taught me how much I ignored my basic needs, and pushed myself too hard.

Being horizontal for several days in a row was quite humbling. I had to listen to my body's need to lie down, no matter what. I had to sleep when I needed to sleep, whether I wanted to or not.

Be careful what you wish for! On the top of my New Year's Resolution list was "I want to slow down this year, for real." Well, I've been pretty darn slow these last two weeks, but it's ok. I'm getting used to it. I told my boss succinctly what I can & can't do, and when I can't or can go into the office. I asked my roommate & friends to help with picking things up, so I don't strain my back. I've stayed away from any physical sports activities (the hardest part for sure). I've been watching lots of NHL games online. I've fixed up my resume. I've tidied up my room. Bought an electric blanket to help with the chilly Winter nights. And I'm getting back into cooking. Oh, and catching up on my light reading.

AND, I've been writing a lot! I'm continuing to record jokes & performance ideas for some comedy I'd like to do. These horizontal days have not been wasted, for sure.

The best part, though, is I learned to see yet another area where my mind plays tricks on me. The reality is that I'm safe & sound and surrounded by wonderful, loving friends. Even my crabby boss doesn't put me in any immediate life or death danger. But my mind thinks otherwise. My mind thinks my vulnerability will result in pain, suffering, or possibly even death. It's not true, and I see how this hidden belief has hindered many areas of my life.

It's caused me not to believe I have something to write, something to say on a stage, or something to teach others. It's caused me to believe my career is fulfilling, when it isn't. It's caused me to "settle" for this career, when it's not what I want. Most importantly, it's caused me to sabotage just about every love relationship I've tried. The fears I have around my own safety and men clearly run roots very deep into my psychic soil.

All in all, it's been a good experience. Anything that is this rich & deeply revealing about myself is a good idea, in my book. Truthfully, I am grateful that this whiplash happened to me, at this time in my life. Any chance to set off the wick that will lead to an emotional catharsis fireworks explosion always results in an "Ooh" and "Ahh" of delight at the end, when I see the ball of color floating in the sky.

Alright that last metaphor was a stretch - time to go to sleep.

One last thing: had all the cancer & crazy challenges last year not happened, my understanding and awareness in this circumstance would not be so expansive. Another moment of gratitude...

Labels: , , , , , ,

Breathe.

09 August 2009
11:46   Bones of the Past

It's so easy to think that there's meat on bones from the past. But, it's an illusion - our minds place this image there. Actually, they're just bones, with flesh, sinew, or bits left. But, how we as humans cling to them is amazing.

I talked to my grandfather today. He's 98 years old. He was in the mood to talk a little bit, after some prodding. He kept saying that his children & grandchildren don't want to listen to him. That we have to live our lives, and make our own mistakes to understand life. It was sad for me to hear this, because it has been true. I know that my mom often painted her parents as whackjobs, and it was never reinforced that I should listen to them and learn from their experiences. Only now as I'm older do I value their wisdom. With my grandmothers, I tried as much as I could to get them to talk about their past, their experiences, their failures & their triumphs. I heard snippets here & there, but never the complete picture. Now they are both gone, and I often pray to them asking for help on how to deal with all the things going on in my life today.

Maybe they & my grandfather don't want to remember how hard it was. Maybe they are grateful to see their children & grandchildren have an easier time of things. Grandpa was saying today that because we have things so easy, we don't want to hear what he has to offer. This is probably true. We didn't scratch out a company from the dirt of Blue Island like he did. We didn't have to face the same ethnic discrimination that he did (in Chicago at least, from the beginning of the 20th century until only recently, even whites of different ethnic backgrounds had rivalries and grievances against one another. Irish against German, German against Polish, Italian against everybody...).

I told Grandpa that I was willing to listen & to learn, but he didn't want to tell me anything. He didn't believe me that I cared to hear him. It deeply saddened me that he doesn't feel validated. What is worse though, is that he wasn't able to accept the validation I was trying to offer him. I asked him to tell me about all the amazing things he & Grandma had accomplished. Not every couple receives honorary medals from the Pope for refugee work behind the Iron Curtain of Lithuania. But, he wouldn't open up.

And, he's not cheery in the least. At least with my dad's mom, she always said on the phone, "It's so good to hear your voice". I'll cherish her for that phrase, always. And my mom's mom always called me "poupy". It was like her version of "poopsie". It must be terribly lonely, though, to be the "last man standing" among all one's friends and relatives. One of the first things Grandpa said today was, "Why would I want to talk to you about something that you can't possibly understand? You can't know what it's like to be an old guy like me, so it's a waste of breath." In one respect, he's right. In another, it's still ok to pass on what you do know about life to whomever will listen, even if they don't understand in the way you want them to.

Although Grandpa was painting a glorified picture of Grandma today (he said she was one of the most positive people in the world - but mostly she talked to me about her ailments. But, she was often cheerful & supportive of us youth; maybe that's what he meant), it reminded me of my own parents, and my siblings. Both my parents had a lot to forgive their parents. They were beaten, sexually abused, told to work at very young ages, and expected to show a good face of propriety to the outside world. Bad things weren't talked about, suffering was swept under the rug, and each grandparent showered affection on their "favorite" child, leaving the others wallowing in benign neglect.

Neither of my grandmothers were angels, that's for sure. Observing my parents, aunts & uncles now, though, is a sad reminder of how people cling to the bones of the past, instead of living life for today. The mental illness, contentious divorces, neglect of cousins, and vulturic circling of the family inheritance instead of earning a decent living burns my gut on a good day.

As the East Bay Summer sun beats down on me on the back porch, heating up my laptop so it sounds like an airplane engine ready to explode from a stuck bird in its fans, I try to let go of these Bones. I try to celebrate the retreat my yoga teacher is on, knowing it helps all of us women to experience her inner journey of self care. I try to give thanks for all that I do have, my friends, my job, the glorious sunshine caking me in sweat. With each breath I try to come back to the aliveness of my being, the gift of my pain - for if I didn't feel anything, than it would be a sign my heart had shut, and locked itself into stone. I'm reminded the weather is good enough to make sun tea, and vow to purchase a jar at the hardware store, if I can get out there today. I thank myself for taking today slowly, snacking & nibbling, staying in my PJs, updating my iPhone, and loafing in general. For the first time since I moved, hearing the mellow sounds of lazy summer afternoon becomes music to my ears. The lack of screeching buses, howling crackheads, honking yuppies in their BMW convertibles because there is no parking, hits me like a hazy cloud of calm, sprayed from a cosmic crop duster.

And I take a breath.

Labels: , , , , , , ,

Breathe.

22 July 2009
16:59   Denver

There's so much to say about being in Denver for 4 weeks. Firstly, I had no idea what to expect. The last time I spent any significant time there, was the summer before my Sophomore year of college. I was totally lost, doing lots of drugs, getting into trouble, barely holding down a job, and hanging out with lots of rough characters.

I was scared of dating, and didn't know how to. I was scared of making good friends, and left people who "wronged" me in the dust, for fear of becoming too attached. I didn't take responsibility for anything, and felt the world was out to get me. This is what happens when a person grows up in an abusive home, rampant with alcoholism and dysfunction in general. A warning to all you parents out there...

But, despite those days, I've made a point to overcome my past. In flew my plane to Denver, and my heart was open to whatever would reveal itself to me; like a lotus bud waiting to flower on a pond. Also, I was so focused on how to get through each day with my mom, that I pushed any judgement about Denver aside.

Boy, I'm so glad I did!

Secondly, it turns out that some of the most amazing, beautiful, loving, caring, and compassionate people live in Denver, and I was lucky enough to meet them! I met wonderful people at the Iyengar Yoga studio ( http://iyengaryogacenter.com/ ) and got some bodywork done from one of the instructors there. The circumstances forced me to try something new, and move away from my usual yoga teacher in SF (whom I still love). It was so neat to learn new techniques for the same poses I've done for years. It helped me to keep Beginner's Mind.

Thirdly, the people at the 12-step group meetings that I attended were totally fantastic! I've never felt so welcomed, so loved unconditionally, than in those groups. The Joy group and the Sunday night Lakewood group were completely amazing. As a result, I've been blessed with deep connections with incredible people that will last a lifetime. I even got a self-care package from Melissa with tons of goodies! You rock, girl!

And lastly, the climbers I met at Thrill Seekers gym ( http://www.thrillseekers.cc/ ) were hella amazing! Dave & Josh treated me to a fantastic day trip to the Dream Canyon of upper Boulder Creek (I'll post photos soon), and Troy & Derek took me to the Capitalist Crag of the Clear Creek Canyon. Bence didn't come outdoors to climb, but he showed me this super cool house that he built. And, he pushed me hard in the gym - what any climber would ask for from a more experienced partner.

All in all, it was a completely & totally amazing experience. People who barely knew me a week were so incredibly supportive, caring, and helpful to me. All these folks opened their hearts to me, in a way that will touch me forever. it just goes to show, that when someone has a bad day, you never know what they are going through. Go the extra mile to offer compassion to them. You never know who you might touch, and lift up, even for just a moment.

The capacity for the human soul to care & offer compassion to others is truly a miracle. I will take this feeling with me, and try to practice it in all my affairs.

Thank you, Denver.

Labels: , , , , , , , , , , , , ,

Breathe.

about this blog

I'm a 30-something professional woman who's mother & brother were both diagnosed with Grade 3 Astrocytoma tumors within about a week of each other. My mother's tumor is in her brain, and my brother's tumor is in his spinal cord, causing him to lose feeling in his arms & legs. These writings are about my experiences dealing with them, coping, loving them, loving myself, and living my life knowing that they are both dying. I hope you find inspiration and courage from my writings to help you get through whatever is going on in your life.


Lady Vroom




whisper



follow me on Twitter




other worlds

Regretsy
Rio Caliente Spa
Casa De Las Flores
Chicago Blackhawks
Youth Yoga Dharma
Being Cancer Network
Bryon Beck
CouchSurfing
Daughter of Cancer
Hockey For The Ladies
Psycho Lady Hockey
Burning Man
Climb On Gym


reminisce

July 2009
August 2009
September 2009
October 2009
November 2009
December 2009
January 2010
February 2010
March 2010
April 2010
May 2010
June 2010
July 2010
August 2010
September 2010
October 2010
December 2010
January 2011
February 2011
March 2011
April 2011

credits

designer joy.deprived
fonts&brushes xxx
images x
image hosting x
software

Adobe Photoshop CS3, Macromedia Dreamweaver 8.0






HONOR ROLL for Excellence in Cancer Writing


Alltop, all the top stories

BlogHer.com Logo

Health Blogs - BlogCatalog Blog Directory

Subscribe to
Posts [Atom]

 Subscribe in a reader