Unravel Cancer: Experiences with family battling cancer
18 January 2010
22:16   Homage to Grandma

Yesterday was the two-year anniversary of my grandmother's passing, my dad's mom. I had forgotten all about it, even after posting to another person's blog about her own grandma. Here is her story:

My grandmother was brought to this country when she was very young, maybe only 1-year old, by my great-grandmother. They lived in a Northside Chicago Polish neighborhood, until a cousin ventured to the Southside near Indiana, where a new Polish neighborhood was forming, amongst all the factories. My grandmother's family soon followed.

My grandmother dropped out of the 6th grade to work at an Hungarian merchandise store. There she learned all about business. She continued to work to support the family, until she met my grandfather & married. The two families offered the couple enough money to buy a tavern in the neighborhood, which they ran for almost 50 years.

My grandmother & grandfather met at a dance hall in the 1930's. She always told me, "He was such a catch." Indeed he was, for my grandmother was no angel. She was a fierce businesswoman at a time when women in business were looked down upon. After all, she had to deal with a lot of drunks at the bar...

The tavern building was also a type of boarding house/hotel place. She did laundry and bedding for an additional charge to the residents. She even held the pay of some of the factory workers, and allotted it out to them as needed for things. Often, they spent most of it at the tavern, and would ring up debt to my grandparents every week...

During Prohibition, family legend has it that my grandparents were running moonshine for Al Capone's gang. Before my grandparents met, my grandfather was the hooch driver into the neighboring states, Indiana, Michigan, and Wisconsin, for his family's operation. Grandma often told me about the time when the war ended, and they were the only tavern for many miles that had bootlegged whisky. She would sell it out the backdoor of the tavern, and stuff the money into the pockets of her housecoat. By the end of the first day, her pockets were overflowing with cash. "Out to here", she would make a big circle with her arms around her belly.

My grandmother was a b*&^% on wheels until around 90 years old. She herself was an alcoholic, and really only stopped drinking a few years before my grandfather passed away in 1996. A master of manipulation, she was as charming and sweet as a snake-oil salesmen when she wanted something from you, but mean as a viper when you crossed her. One of my earliest memories of her was when she swiped my bottom and threw me on the small couch in the corner nook of the tavern backroom. It was a time out I never forgot. By that time, she had raised her own three children, as well as tended to many nieces, nephews, grandchildren, and children of friends in the neighborhood. She was pretty much over it. I remember her always complaining to my dad about me whenever we came over for Sunday supper!

However, she was the best cook! Everything had full-on fat and lots of butter, how we should all be eating anyway. We're all gonna die eventually, why prolong it? If eating more butter means taking 10 years off my life, I'll take the butter.

But I digress.

Grandma was the best fry-cook this side of the Atlantic. She put Southern fryers to shame. We had fried chicken, fried shrimp, fried perogis, fried pork chops. You name it, she fried it. It's not a wonder my poor grandfather suffered 4 heart attacks & a stroke before he finally kicked it. And all the breadings were done by hand. She used a special kind of bread made locally in Chicago, Gonella bread, and dried it just so for the breadcrumbs. And she only used the crust. This fried feast was on top of all the Polish cooking, like sausage borscht (our family's recipe), perogis, chicken & dumpling soup, fried cabbage, sausage & sauerkraut, etc. that she made. And then, she concocted her own versions of American classics like cole slaw and potato salad.

According to another family legend, (I use "legend" because there is only circumstantial claims that back these stories up) one of Al Capone's henchmen that rose fairly high in the South Side ranks really liked Grandma's fried fish. The tavern always hosted a large fish fry on Lenten Fridays. Partly, or possibly mainly, how they got the bootleg whisky, and survived during Prohibition, was due to this Heavy's penchant for breaded & fried fish. A way to a man's heart...

Grandma's favorite game was pinochle. It was the card game most Poles played in the neighborhood. There were always two decks lying around on the bar.

Back in the day, taverns were family places, and it was common to have kids around. My dad & aunts all grew up in the bar, and helped out at young ages. When we'd come to visit, my brothers and I would run around, play at the pool table, and the mechanical bowling machine. There was a park across the street, and my Grandpa often took us there. It was a relief to him to have some fresh air & fun with us kids. It also got us out of Grandma's hair.

Even after Grandpa died, Grandma was a feisty old bird. She always wanted things her way. My angel of an aunt was her caretaker for almost 10 years after Grandpa's passing. It wasn't until her health took a turn for the worse, and we were forced to put her in assisted living, did my grandmother's attitude finally cow. Being forced to give up her freedom was the thing that finally humbled her.

When she first got to the home, I was living in the Bay Area by then, so I called her every weekend to check up on her. She complained that she missed walking down to the beauty parlor to get her hair done, and chat with the neighborhood ladies. She also missed walking to church. She would walk the 3-4 blocks to mass every Sunday, and then also attend all the other prayer services during the week. Bless her heart, even at 89 years old, she would only accept using a cane to walk, and would amble down the street in the dead of Chicago Winter on the icy sidewalks to visit her friends, or see the priest. Like I said, she was a feisty old bird.

A year or so after moving into assisted living, she needed the official nursing home care. Her legs had gotten bad enough that she needed a walker (which she always called the "buggy"), and she needed oxygen more & more each day from her emphysema. Although not a smoker, she contracted it from the second-hand smoke in the bar all those years.

In the last four years of her life, my grandmother and I became very close. I asked her alot about business, and about how to make it in a "man's world". She told me alot of the story I wrote for you today. She offered me unconditional love, and prayed the rosary for me several times a day. I could tell her about family matters, and get wisdom & faith at a truly godly scale. She had more faith in God than Pope John Paul II. We all joked at the funeral that we should use the last of her money to apply for sainthood.

One of the things I miss most about her, was her standard greeting on the phone, "It's so good to hear your voice!". I often say that now to friends and loved ones, and sometimes it stops people in their tracks. They probably never heard someone say such a welcoming & sweet thing before. We need to welcome & be sweet with one another more than ever in today's day...

My grandmother always wanted a better life for me than what she had. Both grandparents worked night & day in the tavern, socking money away as fast as they could get their hands on it. Not only did their three children get college educations, their grandkids did too. In earlier years, she would always give us grandkids the "secret handshake" with a 10 or a 20 in her palm. At the end, she would "sweet-talk" (as she put it) the nurses into giving her extra fruit. She would then press it upon us before we left from a visit. She had nothing to give, but she always wanted to give us something, even if it was an apple.

I'll never forget that generosity, and the sweetness of her voice. The last Christmas before she passed, my dad and I were driving Grandma to my aunt's house for supper. Dad put on a polka CD sung in Polish in the car stereo. Grandma started singing along and bopping her head back & forth like she was a little girl. She was so carefree, even at 94.

Grandma knew she was failing. She held on for all of us to enjoy one more holiday season with her, one more round of my dad's goofy photos, one more round of my aunt's fabulous sausage borscht. She made a point of making sure all the out-of-town visitors were back home, and the grandkids were back at school when she finally let go. My aunt who was the caretaker was incensed that she couldn't be there for the final days. But we all knew that none of us would have let our family's prayer-warrior go without a fight. For she taught all us women in the family how to be fighters, and how to get what we wanted. She taught us how to think of others before ourselves, give with no strings attached, and keep giving to the ones you love no matter what. She taught us that prayer can truly solve all your problems, and create miracles. And, she taught us that you can even re-invent yourself at 90.

Grandma and I still talk often. There have been many occasions where I'm in a sticky situation at work, and ask her for help. Since she was so good at picking the "catch" of my grandpa, I often ask her to pick one for me too. In the most trying times of caretaking for my mother last year, she was by my side whispering the rosary in Polish, praying for me.

As the frenzy of youth continues to fade (thankfully), and more light-hearted wisdom float in, I use her favorite phrase often, "Isn't that somethin'?"

I love you, Grandma.

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Breathe.

27 October 2009
11:54   Blame

Boy, I almost got stuck in a quagmire of blame on that last post. Thankfully the ODAAT was in my desk drawer, and I remembered to crack it open. I looked up "blame" in the index, and read all the entries. These golden nuggets are from those pages.

--"On this day I promise God and myself that I will let go of the problem which is destroying my peace of mind. I pray for detachment from the situation..." (pg. 3)

--"Now I'm learning to look squarely at each difficulty, not seeking whom to "blame" but to discover how my attitude helped to create my problem or aggravate it. I must learn to face the consequences of my own actions and words, and to correct myself when I am wrong. Accepting responsibility is essential to becoming mature. There is no advantage, no profit, no growth, in deceiving myself merely to escape the consequences of my own mistakes." (pg. 78)

--"The bad moments will pass if I do not blow them up into tragedies. ...can help me accept these shocks with equanimity and send me on my way to a better tomorrow." (pg.147)

--"...we can get unlimited benefits from changing our way of thinking. Let's stop throwing blame around. What would happen if we stopped blaming anyone for anything? We would experience miracles of tolerance and grace - rich spiritual rewards, reflected in a life of real fulfillment. Whom have I the right to blame? Let me concentrate on keeping my own conduct from being at fault; more I cannot do." (pg. 268)

--"How great is the human need for a scapegoat, someone or something to blame for our disappointments. I must realize that every time I feel someone has offended or injured me, at least part of my unhappiness is due to the way I reacted. Much that happens to me, good or bad, is self-created. Blaming others for what happens to me would keep me at a spiritual standstill." (pg. 347)

These ideas can apply to all things, like the cancer that strikes a family member, or a passionate tryst with a young fellow, or failure for the home designate to take out the garbage on time, etc., etc.

Hope they are helpful for all of you.

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Breathe.

22 October 2009
21:53   Perspective

My friends, both in and out of my 12-step program, are the most amazing people on the planet. I’m so truly lucky & blessed to have these people in my life.

Last weekend, an incident happened with a person I was dating for about 6 weeks. After he left, I felt gut-wrenched, and called a dear friend, whom I admire & respect, especially when it comes to relationships. She’s like a personal Dr. Ruth!

After I explained the situation, she helped bring some things to light for me. When we hung up, my heart sank to the pit of my belly. I realized what had happened and what I needed to do. But, I told myself to sleep on it, and see how I felt in the morning.

The next morning, I woke with a start, and the first thought in my head was, “I can’t see this person anymore. I’m repeating the same patterns of all my past relationships. This is unhealthy madness, and I need to stop it, if I have any chance at completing the steps.”

From there, the whole rest of the day was spent with mind a-spin, testing out one script after another, editing, cutting out sentences or words, to whittle my thoughts down into what I wanted to say.

I grabbed him for 15 min on the way out of work (yes, unfortunately, we work at the same company. Different departments, though, thankfully). I can’t recall being so nervous in a long while; later it occurred to me I didn’t know how he would react, so I was nervous and a little scared.

Now for some horn tooting: I expressed myself clearly, and articulately, without judgment, scorn or shame on him. I told him what I had done wrong, and apologized sincerely for it.

In his characteristic style, he didn’t respond much at all – a veiled facial expression at best. That was fine with me. I didn’t care at that point. What mattered was I put an end to a modus operendi that had been flourishing, not for lack of my emotional fertilizer, for most of my dating life. Part of my nervousness resulted in knowing just how big a deal this was.

For this time around, my self-destructive and relationship-destructive behavior came to the forefront. I recognized how self-obsessed I am about my feelings in relation to another person’s action. Constantly nit-picking at someone what I don’t like about their actions, consequently making their actions all about me, would drive any halfway sane person to madness. I did this.

Adding to the mix, is the fact I kept my clandestine dating away from my sponsor. All of me and the boi’s interactions where behind my sponsor’s back. Just like the fellow in the Big Book that thinks drinking whiskey with milk won’t affect him, so to I fell into the same “it can’t possibly happen to me” mentality.

Beyond risking my step-work, my relationship to my sponsor, as well as my relationship to my Higher Power, I also risked my job. At one point the addiction to lust was so great, I dialed-in late to a very important meeting, with executives attending, because the boi & I were fooling around one morning at his place instead of working. My boss read me the riot act. The next week, again exhausted from a late night at his house, I was late for another meeting. I thought I’d lose my job.

All this for a boi.

Now the perspective of my foolishness has come into the light. Now my understanding of the disease of alcoholism has revealed its scaly underbelly to me. Now I know just how truly sick I am.

Don’t take this the wrong way – I’m not self-flagellating in a co-dependent way. Obviously the boi played a part in this too. But how much of his actions were a result of my mad selfishness? How much did his ugly side come out as a result of my manipulation & judgment?

One of my program friends said that we attract people that are the same emotional level as us. The sting of this truth could only be healed with spiritual Neosporin. (Deosporin?) At the end of the day, in looking at all my failed romantic relationships, the common denominator was me. After all sorts of guys, from all walks of life, dating me was the only thread throughout.

By the grace of a Power greater than myself, it is now plainly in my vision the lack of respect I have for myself, the ways I slip into physical intimacy so easily, and my selfish handling of requests of my time. I’ve hurt a lot of people, including myself.

The other challenge I face, is women all around me seem to not have this problem. They can hop in the sack with someone fairly early on and still develop a relationship based on that. My desire for old-fashioned courtship seems out-of-touch. Maybe what drove me to this tryst was the fear that if I asked for what I really wanted, I wouldn’t get it. If I had asked him to put the entire relationship on ice, he’d say no. But what if he had said yes? What if I gave him the opportunity to be chivalrous & respectful? Maybe he would have walked down that path… And, maybe we’d be in a totally different place right now - one of mutual respect and understanding.

And if he had said no, Eff ‘em.

My only hope is that gaining this perspective can lead me to healing & peace, a life truly without fear. Now that the thick moat of Denial has been sieged, and the castle walls of my self-absorption are crumbling, maybe these character defects will truly be removed.

And a gracious, humble, and love-filled Thank You to my friends for your support, and help in giving me perspective.

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Breathe.

26 September 2009
12:33   4th Step Done!

It's been done for a week, actually. Almost 1500 entries of my resentments were listed. It was quite a relief to be completed.

I learned so much about myself by doing this exercise. Splayed out on the page, with nowhere for me to hide, was my continuous pattern of taking things personally. In circumstance after circumstance, if the situation didn't go my way, I'd either point the finger & blame others (especially in the "their out to get me" victim-mode), or I'd blame myself, and tell myself I suck because I'm not perfect.

Wow, what a load off. These patterns are so insidious, that truly at this point, only a power greater than myself can remove them.

Additionally, thinking like this has lead to a type of selfishness. My sponsor says over & over again that our society, even the whole world, perpetuates the idea that what we "feel" is "real". Therapists ask "how did that make you feel?", little kids are taught the feeling chart "happy", "Angry", "Sad" with smiley faces. So I feel something - so what?

I have no idea if I'll ever change as a result of these steps, but countless others have tried them and experienced a spiritual awakening. I'm hoping that continuing on with the steps will bring me to a place where I can be of service & useful to others, just like my sponsor suggested. In seeing my own self-absorption, it doesn't feel that great. I'd like to think of others. In fact, the last 2 dudes I dated complained I wasn't giving them enough time. But really, I can see now, I wasn't thinking about anyone but myself.

Don't get me wrong - I'm not trying to dis myself here. But just take an objective view of how I've been living my life. There's no shame, or right/wrong here. I developed the way I did, and there's no changing the past. But, taking a thorough look at myself gives me the hope to change for the future...

On the advice of my sponsor, I'm continuing on with a daily inventory. This is a helpful relief, as it continues to remind me of my selfish reactions every day, especially at work.

And, although I haven't gone through all the steps yet, just bringing my attention to these patterns has helped to reduce them. I'm really excited for the next steps to come.

Yay!

Next post will be about the roller-coaster relationship with my sponsor, and seeing her program in action - a humbling & beautiful experience. Stay tuned!

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Breathe.

31 July 2009
22:28   Right | Gentle

My dad has been telling me a story from his early days in AA. He said he had a problem with someone & was complaining to his sponsor about it. His sponsor took out a business card, and folded it in half so it stood like a tent. On one side he wrote "right" and the other side he wrote "gentle".

He asked my dad, "Would you rather be right or gentle?" This lesson in reducing my expectations of others and moving more into a flow of accepting what is, has been quite difficult, yet progress has been made.

So it has been, with my state of affairs these last 2 weeks. What the yoga retreat taught me was to be gentle with myself, no matter what was going on. Even though my body was reacting in all sorts of different ways, and I've been sleeping for 12 hours a night and waking up tired, and not leaving the house much, I'm gentle with myself in these actions. Clearly my entire being has needed sincere rest, and regeneration. This has resulted in me not going to any meetings for 2 weeks, and only lightly touching on the daily suggestions my sponsor wants me to do.

Yesterday when she called, she kicked me hard in the ass to get back on the program bandwagon. She said I couldn't call her if I wasn't going to work the steps & daily suggestions the way she outlined for me. She said I wasn't committed to the program, and that she sponsored so many people that she couldn't waste any time on someone not working the steps. Needlesstosay, I was quite resentful & angry after the phone conversation. Later that evening, I wrote more of my 4th step, and included her, but it didn't seem to help. My pride is severely wounded, so I've been in "stinkin' thinkin'" mode since yesterday, and frankly I'm confused.

One slogan of 12-step programs is "first things first". This is a way to help prevent your brain from going to CrazyTown with distractions and overwhelm at a situation, and instead focus on just the immediate task at hand. In a way, I was doing this by trying to stay present with everything I felt, including the massive fatigue & lack of concentration. This often lead me to shirk my daily 12-step responsibilites. But, I also knew that sleep & taking care of my body, was the first thing I needed to do.

Another slogan is "Do the next right thing". What the "right thing" is changes all the time. For me, the "right thing" in these last 2 weeks has been to sleep as much as my body has asked for, to be gentle with myself, to give myself full permission to relax and go slow, to write this blog, and to cry & smile when the mood struck me.

Honestly, doing these things was a great sign of progress for me. Even though I felt physically mopey, lethargic, and worn down, inside I was quite content. For the first time, probably ever in my life, I was allowing myself to just be, without forcing myself to do stuff or be perfect in the eyes of my mom, my family, God, or a mystic cloud of peer judgement. That niggling feeling of anxiety that I wasn't "good enough" or "perfect" was barely present these last 2 weeks. It was like I climbed to the top of a high mountain on a spring day, and finally caught my breath.

Instead, I've been using the best two-letter sentence ever created: N-O I've said No more these last 2 weeks than in my entire life! It feels great! Actually, saying No is only half of it. When the person I said No to, respects the No, and honors it, THEN it's a completely satisfying reflection of self-love. It's yet another amazing result of all this hardship & pain. I'm no longer afraid to say No.

But, I digress.

What wasn't so thrilling was hearing my sponsor say No to me. Ahh, life is different when the shoe is on the other foot, eh? I have to laugh at myself for this. :)

On one hand, I can see where she is coming from. She's right: she's not a therapist, so it's probably not a good idea to talk to her about everything with an assumption I'll be helped or feel better.

On the other hand, she also told me a condition of working with her was that I was to not be in therapy, I haven't been. If I need support beyond the steps, or I have questions about what's happening (like the fatigue, etc.), or if I want to learn about her experience with the 4th step, I can't ask her unless I'm doing all the stuff she prescribed. This just doesn't feel right, nor make any sense.

It just seems like all the grief & sorrow is perfectly normal for someone going through my situation. Yet, it's beyond the framework of the steps. The steps teach us how to deal with alcoholism or drug addiction, not the death of a loved one from cancer.

The experience with my sponsor left me so unnerved, that I felt like ending the relationship. While I could see her point fundamentally, it was the lack of gentleness that blew me away. Nobody should be talked to, and put down like I was in that conversation. Something just seemed seriously wrong. Since I've gone through so much of this process with her, though, it seems impractical to find a new sponsor. I'm only half-way done.

The hardest part of the experience of having 2 family members dying of cancer, is having to be so strong for everyone PLUS be strong for myself. It's been such an unrelenting tsunami of chaos & intense feelings, that I'm tired, exhausted. Literally! My body is reflecting that, right? (*schink* a lightbulb lit above my head) I just want to be weak for a change, to fall into the arms of someone else who can hold me for a while, because my arms are tired of holding myself. I just want a shoulder to lean on sometime. I thought my sponsor could be that shoulder, but clearly she cannot. I thought my roommate could be that shoulder, especially since she was so beautifully before I left, but she is not that shoulder either.

The spiritual option would be asking God or my Higher Power to be that shoulder. Somehow it's just not as satisfying as a real live voice, or a real live shoulder. It's worth a try though. What else have I got to lose?

Meanwhile, I'm not sure what to do about this sponsor thing. So, the next right thing in this situation, is to do nothing. When the next next right thing reveals itself to me, then I'll take action at that time. It may be a day, a week, or a month, but I trust I'll know it when I see it.

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Breathe.

22 July 2009
16:59   Denver

There's so much to say about being in Denver for 4 weeks. Firstly, I had no idea what to expect. The last time I spent any significant time there, was the summer before my Sophomore year of college. I was totally lost, doing lots of drugs, getting into trouble, barely holding down a job, and hanging out with lots of rough characters.

I was scared of dating, and didn't know how to. I was scared of making good friends, and left people who "wronged" me in the dust, for fear of becoming too attached. I didn't take responsibility for anything, and felt the world was out to get me. This is what happens when a person grows up in an abusive home, rampant with alcoholism and dysfunction in general. A warning to all you parents out there...

But, despite those days, I've made a point to overcome my past. In flew my plane to Denver, and my heart was open to whatever would reveal itself to me; like a lotus bud waiting to flower on a pond. Also, I was so focused on how to get through each day with my mom, that I pushed any judgement about Denver aside.

Boy, I'm so glad I did!

Secondly, it turns out that some of the most amazing, beautiful, loving, caring, and compassionate people live in Denver, and I was lucky enough to meet them! I met wonderful people at the Iyengar Yoga studio ( http://iyengaryogacenter.com/ ) and got some bodywork done from one of the instructors there. The circumstances forced me to try something new, and move away from my usual yoga teacher in SF (whom I still love). It was so neat to learn new techniques for the same poses I've done for years. It helped me to keep Beginner's Mind.

Thirdly, the people at the 12-step group meetings that I attended were totally fantastic! I've never felt so welcomed, so loved unconditionally, than in those groups. The Joy group and the Sunday night Lakewood group were completely amazing. As a result, I've been blessed with deep connections with incredible people that will last a lifetime. I even got a self-care package from Melissa with tons of goodies! You rock, girl!

And lastly, the climbers I met at Thrill Seekers gym ( http://www.thrillseekers.cc/ ) were hella amazing! Dave & Josh treated me to a fantastic day trip to the Dream Canyon of upper Boulder Creek (I'll post photos soon), and Troy & Derek took me to the Capitalist Crag of the Clear Creek Canyon. Bence didn't come outdoors to climb, but he showed me this super cool house that he built. And, he pushed me hard in the gym - what any climber would ask for from a more experienced partner.

All in all, it was a completely & totally amazing experience. People who barely knew me a week were so incredibly supportive, caring, and helpful to me. All these folks opened their hearts to me, in a way that will touch me forever. it just goes to show, that when someone has a bad day, you never know what they are going through. Go the extra mile to offer compassion to them. You never know who you might touch, and lift up, even for just a moment.

The capacity for the human soul to care & offer compassion to others is truly a miracle. I will take this feeling with me, and try to practice it in all my affairs.

Thank you, Denver.

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Breathe.

about this blog

I'm a 30-something professional woman who's mother & brother were both diagnosed with Grade 3 Astrocytoma tumors within about a week of each other. My mother's tumor is in her brain, and my brother's tumor is in his spinal cord, causing him to lose feeling in his arms & legs. These writings are about my experiences dealing with them, coping, loving them, loving myself, and living my life knowing that they are both dying. I hope you find inspiration and courage from my writings to help you get through whatever is going on in your life.


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July 2009
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